A letter to my son on his first birthday.

Dear precious Malachi,

My world stood still the first time I laid eyes on you. In fact, if I close my eyes I can still see your fragile body just as vividly as I could a year ago.

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This image always stands out in my mind when I feel worried about what the future holds for you. I think about how far you have come…the mountains you have overcome, and the progression we have seen.

God has certainly had his hand on you from the start.

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It always amazes me to think that the God of the universe heard our pleas and cries, and choose your life to spare.

A year ago I couldn’t touch you, or talk too loudly in your presence. Instead, we filled your room with whispers of lullabies, and quiet streams of tears as we pleaded with God to save your life. With every odd and statistic telling us that each second may be your last, we stayed by your side. We believed in you, even when a reality of a life with you seemed unrealistic and unattainable.

With each new diagnosis, including an intraventricular hemorrhage and resulting hydrocephalus, our hopes of a future with you seemed more bleak. And yet, after 6 weeks on a ventilator, 137 days in the hospital, 2 brain surgeries, 1 abdominal surgery, and what seems like a thousand barbaric eye exams, needle sticks, and doctor appointments later…here you are!

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It is with so much gratitude and grace that we celebrate your first birthday.

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Time has been so surreal this year, with those early days in the NICU seeming to drag on so painstaking slow, as we rejoiced in every second that you remained here on this Earth with us. And yet, I feel like this year has come and gone so quickly…with the highest of highs, and lowest of lows.

Throughout this year you have shown us your strength and perseverance to live. Even through all the pain you have been through, you remain so full of life and delight. You are our number one hero, and the child that we prayed for with such vigilance.

You have impacted this world so greatly in just this short first year. You have had so many people praying for you, people that you have never met. Complete strangers and people from all across the world lifted your name up in prayer.

You have restored people’s faith, and made us believe that miracles really are possible. That all things are possible in Christ.

Because of your birth, your mommy and daddy have been forever changed. We see the light of God shining down on you with each passing day-and we feel so privileged to call you “ours.”

And to think-this is just the beginning.

We enjoy every moment of watching you grow. Even with all the fears and worries, we know that you will grow to be the exact person that God has intended you to be.

We are so proud of you.

We know that your brother is looking down on you and smiling. He is living and breathing in and through you. I can sense his presence when I hold you close.

You are the little boy that wasn’t supposed to survive. The boy whom was deemed to live a life that was “less than quality.”

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But God had a greater plan.

You are my smiling, cuddly, lovey boy. The boy that loves peek-a-boo, and laughs with such jubilance. The most determined boy, who pulls up on everything. Who is fearless-and crawls around, despite having high muscle tone in his legs and arms.

You amaze me Malachi.

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I love you so much. I REJOICE in you today and every day.

Xo,

Mommy

 

 

My precious Michael,

I watched balloons rise high to the sky today, to wish you the happiest of birthdays in heaven.

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I held back sobs of tears as a heaviness fell on me. I thought, “he should be here.”

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But even in the midst of all the emotions that I am feeling today, as I relive your birth, I can’t help but smile as I think of the first time I saw you.

11:08 p.m. 1 lb 6 oz of pure sweetness.

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Your delivery was not easy. It was full of tears, and crushing pain; but being able to give birth to you was worth everything.

I feel so privileged that God handpicked me to be your mother. To carry you in my womb, and give birth to you and your brother. Even though your life here on Earth was painstakingly too short, it was also meaningful.

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I don’t understand why it all happened the way it did, and why we have to remain so far away…but I will always love you with an intensity beyond belief.

Forever I will grieve you, but especially on this day…December 28th.

Sometimes I wonder if God allowed you to live and then die so that I could be used as his vessel. So that such depths of pain and brokenness could then be turned into usefulness for the kingdom of God. It doesn’t take away the pain and void that I feel as your mother, but knowing there is purpose in your existence helps to shed light to my aching soul.

I am forever changed because of your life. I love harder, and feel deeper. Heaven feels closer, and this finite life seems so brief. For I know that this is not my home. No…Home is with you. You are where we all long to be.

I want you to know that I am so proud of how hard you fought in the NICU. You were a little rock star, who had all the doctors blown away by your will to live. And like a thief in the night, infection and sepsis snuck in to steal my little bundle of joy…My life…my baby boy.

YOU Michael are just as precious to me now as the day you were born. It is with such tenderness and affection that I dwell on your life today and always.

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Thank you for making me a better person. Thank you for living long enough for me to love on you, to hold you, and tell you how wonderful you are. I truly believe that God allowed you to live those 3 weeks for your daddy and I. We needed to know you. We needed to hold you, and love you, and feel a part of your life.

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I’ll never forget the warmth of you on my skin, and how your touch melted all my fear away. I never stopped believing in you. Even in your last seconds of life, I hope it was evident to you the depths of my love. A mother’s love is the strongest love there is.

You are not just a statistic. You are my son. My baby. And I will never get over the loss of you. But it is with such great honor that I call you MINE.

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My wish for you today on your first heavenly birthday, is that your life and legacy will be remembered. That your memory will leave a lasting mark on all who knew you and took care of you.

I love you Michael. Forever my baby you’ll be.

Xo,

Mommy

A Bittersweet Christmas

Daddy is home, and the house smells of Frasier fir, with a tint of homemade chicken and rice soup, just like grandma used to make. YUM.

Malachi is crawling around the living room, and trying to pull up on just about anything he can get his hands onto.

Michaels white and gold Christmas tree is blaring in the corner of the room, and it is almost as if his very spirit is beaming.

This Christmas is certainly different.

I can’t help but feel like I am entering this Christmas with both feelings of absolute delight and yet, a great big pit in my stomach.

It’s hard to explain.

I don’t want to come off as ungrateful. In fact, just the other day, my mom said “I am so beyond grateful that Malachi survived…I couldn’t imagine life without him.” And that is exactly why I am overwhelmed this Christmas. Overwhelmed with gratitude that my sweet loving Malachi is HERE. But, there is also a hint of great despair as I enter this holiday without my precious Michael.

I am not going to lie. It is hard.

But, I refuse to let my despair dampen my Christmas spirit. Michael is in the very presence of our Lord and Savior, the very reason for the season.

Yes, my heart is so heavy; but then again- I am oh so grateful. So full from within.

This time last year I was very much “feeling” pregnant. In fact, I remember having a hard time just wrapping presents, with my big belly in the way. In a sense these memories bring joy…my sweet babies were safe inside of me. And yet, I also feel great sadness as I remember their little kicks and moves from within me, and how I would sing to them every night. I wish I could just hold onto those moments in time forever. I wish I could just feel Michael one more time…

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You see, in some aspects, I am overwhelmed with gladness this Christmas. With this newfound joy that is both tangible and felt with such depth.

Malachi is making gross motor strides that I could not  have even dreamed we would be seeing at this point in his life.

He had an amazing MRI report last week. One that showed his ventricles in his brain have gone back to normal size, which the doctors told us was not possible considering the “vast damage” that was caused from his intraventricular hemorrhage at birth. His brain is growing, and he is learning new things every day. We cannot help but feel so grateful for the miracles and progression we have seen in his life.

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We have even started new-fangled traditions, such as cookies for Santa, Christmas pajamas, and giving to a child in need in memory of Michael.

We have had fresh memories to cherish, like picking out a Christmas tree with a baby on my hip, and trying to adjust to a baby that is suddenly mobile, while ornaments are just screaming to be touched and mangled, and stockings are begging to be pulled off the shelf.

Its fun. It is exiting, new, and fresh.

There are wonderful things that are happening this Christmas, and even so, there is also a lot of heart ache.

Not just for me, but for so many families entering this holiday. So many people that have a heaviness in their hearts. A spirit that is crushed. There are people that are hanging on by the grit of their teeth.

You see, just a few miles down the road, there is a beautiful black headstone adored with a white tree and ribbon where a little boy rests. This little boy should be joining in on all the fun, the traditions, and laughter. But instead, his mother’s heart and arms are left with an emptiness that only his presence could fill.

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Right now I know of a little boy that is going to spend Christmas in a hip cast that severely limits his mobility. There are babies in NICUs and children in PICUs all over this country. There are people who are out of work, and those that are struggling just to pay their light bill, let alone Christmas presents for their family. There are mothers who are grieving the loss of their children, and mothers wondering if their child will even survive until morning. There are broken families. There is real pain. Real fear. Real hurt.

We need a perception change.

YES, Christmas is a season of spending time with your family. For parties, and gatherings…and sharing memories and laughter with the ones we love. But, it is so much more.

My fear is that we will leave Christmas morning with torn wrapping paper, the greatest gifts imaginable…with stomachs that are full and content…and hearts that are left empty and unprepared.

So many of us are living with our “visor” or “shades” on. These are the things in our lives that keep us solely focused on OUR life and OUR problems. We all need our visors ripped off in a sense.

This is my hope for you this Christmas.

That you will see beyond your daily interactions and feelings, and begin to search for God’s love and grace in your life like never before.

We are called to be the light of the world. To demonstrate love, just like our father, whom shows us the greatest love of all. I pray that you will enter this Christmas and New Year with a greater love, and purpose.

Lord, give us hearts to embrace the plans you have for our lives, so that we can accomplish what YOU have in mind. Give us eyes to see the hurt and fragile people in our lives. To reach out beyond our families, churches, and comfort zones…and to grow in a deeper and richer relationship with you.

Lord, let our eyes stay focused on you, so we don’t get distracted by appearance, possessions, and social media propaganda. For we know that these things mean nothing if our lives are not one of purpose.

May our lives be fruitful in your eyes. And even in the all the commotion of the holidays, let us still make the time to honor and glorify YOU.

Lord, you are the great comforter for all those that are weak and weary. You see me in my brokenness, and desire to mend my heart, and make it a vessel for your usefulness. You see the worries I have about Malachi…his struggle to eat, and communicate.

You see the void that is in my heart as I face this first Christmas without Michael. You know it all. And you care, so deeply.

To all those that are hurting this Christmas season, you not alone. But through HIM, we are more than conquerors. Within our souls we have great love and purpose just waiting to be ignited. Behind our layers of scars and wounds, there is real strength, laughter, and joy.

Take time this season to mourn and cry…but also allow yourself to feel goodness. There is greatness within us all, we just have to unleash the potential that is inside.

Merry Christmas to all, whether bittersweet, or filled with cheer. We all have something to celebrate this year.

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